Christmas and The Next Round of Chemo

Julia had a wonderful Christmas week. Her counts were great and she did not need to go back to clinic until Tuesday. She was able to go to school for the week before Christmas vacation and join in all the holiday parties. On Wednesday night, we made a visit to see Santa. Julia couldn’t wait to see him and tell him what she wanted for Christmas. She patiently waited in line until it was her turn. She ran towards Santa, arms wide open, “Santa, I am so glad to see you!” She quickly climbed on his lap and told him all her Christmas wishes. First thing on the list, “Santa, I want a hug from you.” Santa quickly obliged and her first wish came to be. Julia spoke to Santa for a few minutes, but no o

A Weekend of Holiday Spirit and an Early Gift – Great Counts

What better way to get in the holiday spirit than to spend a few days in New York City. We spent Saturday morning, looking at all the store windows and strolling through the market at Bryant Park. We watched the ice skaters in Bryant Park and Julia stopped to make a wish in the fountain. Thanks to some of Santa’s special elves, we had tickets for the 4:30 Radio City Christmas Show, so we headed back to the room in the early afternoon so that Julia could get some rest. She had quickly become tired from all the walking and we wanted to make sure that she was ready for the show. After making our way through the mobs of people at Rockefeller Center, we arrived at Radio City. After a short wait i

Counts One Week After Chemo

Julia started the week with a clinic visit on Monday afternoon. When I picked her up from school, she was in the nurse’s office. She had complained of a headache and needed to lie down. This is not the first time in recent weeks that Julia has complained about her head. I mentioned it during her clinic visit and we need to start to track when she gets them to see if there is a pattern or common thread. Dr. Julie thinks it may be the Zofran – something that helps, causing a side effect. Julia’s counts were low (platelets 123, ANC 4185, hemoglobin 9), even with the magical Neulasta drug, but not low enough for a transfusion. We will need to track how they drop over the next week until they beg

Another Chemo Round Begins

We headed to clinic on Monday morning. Julia’s port was accessed and a blood test was taken. While we waited for results, she was examined by Dr. Julie. Julia made counts and she was able to start the next round of chemo. This round is five days of Cytoxan and Etoposide, requiring hydration before and after the drugs, so clinic days are long. Monday was an exciting day for Julia, as she was able to “Skype” with her class for the first time. At 1 PM, we logged onto the computer and Julia was able to see her class and join in on the day’s math lesson. She was so excited to see everyone!!! Her face beamed when she first saw Mrs. Russo and then seeing each of her friends as they came up to the c

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Julia's Grace Foundation  |  PO Box 1081, Royersford, Pennsylvania 19468