- Sep 6, 2013
The End, the Beginning
Julia had a difficult morning, her breathing was more labored and her cough continued. More medicine to make her comfortable. As I...
- Sep 6, 2013
Moments
Julia has been sleeping most of the time; a combination of the pain meds and needing to conserve her energy for breathing. The doctors...
- Sep 2, 2013
A List
Late at night when I can’t sleep, I still find the need to write. Originally, I started this blog to keep family and friends informed of...
- Aug 30, 2013
Heartbroken
So much has happened in such a short time. I sit here watching Julia sleep and try to find a way to express everything that has taken...
- Aug 26, 2013
The End of Summer
We picked Julia up from Ronald McDonald Camp last Saturday. What a wonderful time she had! When we arrived, all the kids were in the...
- Aug 15, 2013
Hump Day
On Sunday, Julia left for a week at Ronald McDonald Camp. As hard as it was to let her go and not see her for five days, we knew how much...
- Aug 11, 2013
Another Goal – RMC Bound
Julia started chemo on the evening of July 31 for the usual 5 day course – 5 pills a night along with her Zofran and Ativan. She had a...
- Aug 1, 2013
Keep Trying
On Saturday, Julia ran up the steps and we noticed that she was out of breath. This wasn’t something that we had noticed for some time...
- Jul 28, 2013
Preparing for Camp and a Phillies Game
Julia had a clinic visit this Monday. Her counts were good and it appears that everything is stable. Listening to her lungs, there...
- Jul 13, 2013
Another New Normal
Julia had a clinic appointment on Monday. Everything appears to be stable and she started the second round of Temodar that evening. She...